I was back at the clinic on the 16th for cycle monitoring and the Intralipid infusion.
I was booked for 8:30am for the intralipid so I needed to get in before that for ultrasound and blood work. Their process has definitely improved since I was last there.
I got down a bit later than I had planned only because I left a little later and didn't know what the traffic would be like. So I was in the clinic about 8:15am. I signed up on the doctor's list and marked that I would be over in the OR for the Intralipid so he wouldn't see me until later. I then signed up on the ultrasound list and took my number (23) and walked over to sign in for blood. I think I waited maybe 5 minutes before my name was called. I went back over to wait to be called for ultrasound. It shouldn't have been more than 15 minutes because I heard them call "19, 20, 21, 22, 24)....what??? Where's 23? Turns out my file was over on the OR side so they had to go get it before they could call me. It was about another 10 minutes before I was called and told to wait by one of the U/S rooms.
By the time I got over to the OR for the Intralipid it was about 9-9:15am.
One of my favourite nurses from 2010 is now the manager over there, so it was nice to see her. She didn't think I'd remember her. :)
Anyway, they went through the necessary steps to get the IV in and get me all hooked up. I'm sitting in one of their reclining massage chairs. I got it positioned with my feet and head back to a comfortable position and turned off the massage and settled in for the next 2 hours. I just wanted to be comfy to watch my Tr.ue Blo.od episodes on my iPad. It's a painless process. They hooked up saline first and then hooked up the Intralipid which is this white soy/egg based product. They asked me 3 times if I was allergic to either (I'm not) and then it was going. I had a blood pressure cuff on the whole time which took my pressure every 15 minutes. Once it was done, they ran saline through the line to make sure it was all through. Then I was disconnected from the IV and headed back over to the other side to see the doctor and the nurse.
It was about 11:30am when I got back over and barely busy. I checked back in at the desk so they knew I was back and went to sit down. I saw the Doctor in an office finishing up a file so I'm thinking "great, it won't be too long". Next thing I know I see him at the desk and then watch him head over to the OR. Damn! He's gone to do a procedure or two. So I head back to the desk and express my displeasure that he didn't see me before he went over because it could be another 1-2 hour wait for me. Apparently the person I checked in with had gone for lunch and not mentioned that I was waiting so he didn't know. In any case, my rather frustrated tone got my point across that I had been there since 8:15am and doing the intralipid so waiting wasn't acceptable. Turns out he had a retrieval and a transfer and at that time he was almost done the retrieval. So my wait was about 15 additional minutes before I saw him.
We set transfer for the 23rd (they'll call with a time) because he's in surgery on the 24th and he said my lining was good. It was 12 and as I said to him, I've never had an issue building my lining. So then I headed back out and ran into my nurse who I had to see next.
She really is awesome. She's made every effort to get it set up so that I could buy all of my meds through the pharmacy rather than through the clinic. In the past I've always had to buy the progesterone in oil from the clinic because it was specially formulated for them. It still is, but it's made by the pharmacist who is in the pharmacy in the building. So, I was able to go down and get all the meds I need. However, it turns out that because the PIO is a compounded medication, I still had to pay for it and will have to submit for reimbursement. That's okay because I can buy the number of vials I need if funds are low that week. Each vial is 5 injections so I can time it as needed.
So, I'm still taking 4mg of Estrace three times a day, and 5mg of Prednisone twice a day. I am still doing the 81mg low dose aspirin, plus I take 5mg of Folic Acid, 100mg B6 and 1000mcg of B12, and I've added a multi vitamin.
She's now added, starting on the 20th, 100mg of Doxycycline twice a day for three days. This is a standard antibiotic that is used before all transfers. I'm to take 16mg of Medrol once a day for 4 days starting on the 20th as well. They had just started using Medrol when I was there in 2010 but I never got the chance to see if it would help us. It's used to aid in implantation. Also on the 20th we're starting the PIO, 2ml once a day. In the past, I've never been told that there is a time in the day that would be better to do the injection so I've always had V give me the shot before I head to bed as there is more time. However, she told me that she recommends that it be given in the morning because you're moving around for the rest of the day, rather than relaxing or going to bed, so it's easier for it to dissipate. I still have to look up the best ways to "prep" the area before the shot. LOL. And finally, I'm going to be adding 2500iu of Fragmin (which is the same as heparin) starting the day of transfer.
I did find out from our benefits companies that mine won't pay for the Intralipid at all (not a surprised) and V's says no but seems to have a way it might be covered. The Canadian Drug Association says it has to be administered by a hospital to be covered which means the hospital covers it. However the clinic is part of the hospital system here, so I'm going to get a letter from them stating this in the hopes we can get these infusions covered. At $330 per infusion, it would be really good to get it covered.
So I've had the first infusion which is given 7-10
days prior to the transfer date. So because we did the the intralipid on May 16 it would be
optimal for the embryo transfer to take place between May 23 and May 26. So we're set for the 23rd. If
pregnancy is achieved, the second intralipid would be scheduled within 2-5 days
of a positive blood test. I'm hoping we reach that point and then I'll try for a Saturday infusion so I don't have to be late for work. The intralipid are then scheduled at 6 weeks,
8weeks, 10 weeks, and 12 weeks.
I've also spoken with the business manager and arranged a payment plan which spreads the payments out over three months...four really based on when I asked her to hold the second payment to after June 28th. She offered to wait until after my billing date. :) My first installment needs to be paid before transfer. Normally I would have stopped in just before transfer but she won't let me. LOL. I will send her an email this week to have her charge my card and she'll leave me a copy of the receipt. And she told me to be zen. LOL....not let any stress get to me at all.
I'm trying not to let hope creep in yet. But it's hard. Everything is just falling into place this time, like it is meant to be.
All bits are crossed.
3 comments:
It's been a loooong time coming. I have everything crossed twice for you. It's hard to walk and see like this, but all of my crossables are crossed.
Thanks! I'm trying not to get hope get the upper hand.
Get one of the minions to act as your guide :) Should help you walk and see. LOL.
Iam hoping for a good outcome for you too.
Good luck!
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